This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC047408 is the identifier for this organisation within the scheme.
Description
Objects The Association is established to: a) Preserve and protect the health and promote the welfare of persons affected by all types of Neuronal Ceriod Lipofuscinosis (NL) commonly known as Batten disease. b) To advance the education of the medical profession and the general public on the subject of Batten disease and its implications for the family. c) To promote research into the management of Batten disease and to publish the useful results thereof and to support organisations promoting research into Batten disease.
Also known as
- Bdfa
OSCR Charity number
Registered
Postcode
BD18 9GE
Website
Latest income
£545,653 (on )
This organisation record is based on data from Office of Scottish Charity Regulator Charity Register Download published by Office of Scottish Charity Regulator.
More about this organisation
Find that Charity is not responsible for the content of external websites
Twitter, Facebook and Wikipedia links from Wikidata
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC047408 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
Activities (OSCR)
- It makes grants, donations, loans, gifts or pensions to individuals
- It carries out activities or services itself
Beneficiaries (OSCR)
- Children or young people
- People with disabilities or health problems
- Other defined groups
- Other charities or voluntary bodies
Purposes (OSCR)
- The advancement of education
- The advancement of health
- The relief of those in need by reason of age, ill health, disability, financial hardship or other disadvantage
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Associations
AS -
Beneficiary group
BE» FamiliesBE103 -
Education
ED -
Health
HE -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» Medical researchRS101
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2017-05-12 |
Registered as a charity |
|
| 2018-08-31 | 442,245 | 506,295 |
| 2019-08-31 | 373,826 | 279,779 |
| 2020-08-31 | 274,407 | 279,174 |
| 2021-08-31 | 635,015 | 308,938 |
| 2022-08-31 | 545,653 | 554,602 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
View this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
CAF
CAF Resilience Fund Phase 2 |
£65,402 | Grant to Batten Disease Family Association | ||
|
The National Lottery Community Fund
National Lottery Awards for All England |
£9,140
3.901639344262295 months |
Peer Befriending Programme
Jan 2022 to Apr 2022 |
||
| True Colours Trust |
£5,000
1 year |
Sessions for siblings of children with Batten Disease – COVID19 response
Oct 2020 to Oct 2021 |
||
|
Department for Digital, Culture, Media & Sport
Coronavirus Community Support Fund |
£35,820 | Coronavirus Community Support Fund | ||
|
CAF
CAF Coronavirus Emergency Fund |
£7,722
3 months |
Grant to The Batten Disease Family Association | ||
| The Fore | £4,000 | RAFT COVID-19 response grant to The Batten Disease Family Association | ||
|
CAF
CAF Resilience Fund Phase 1 |
£30,000 | Grant to Batten Disease Family Association | ||
|
Quartet Community Foundation
Donor Directed |
£100 | Grant to Batten Disease Family Association |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- The Fore (1 grant) | Licence | GrantNav Publisher page
- Cabinet Office (1 grant) | Licence | GrantNav Publisher page
- CAF (3 grants) | Licence | GrantNav Publisher page
- Quartet Community Foundation (1 grant) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (1 grant) | Licence | GrantNav Publisher page
- True Colours Trust (1 grant) | Licence | GrantNav Publisher page
Find that Charity
Find that Charity Relationship Lookups
Last fetched from source: 2024-04-26
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|
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Source for record links:
Office of Scottish Charity Regulator
Office of Scottish Charity Regulator Charity Register Download
Last fetched from source: 2024-04-25
Open Government Licence v2.0
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Source for records:
Charity Commission for England and Wales
Registered charities in England and Wales
Data download service provided by the Charity Commission
Last fetched from source: 2024-04-26
Open Government Licence v2.0
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|
Download data (zip)
Source for records:
Research Organization Registry Community
Research Organization Registry
ROR (Research Organization Registry) is a community-led registry of open, sustainable, usable, and unique identifiers for every research organization in the world. ROR includes identifiers and metadata for more than 100,000 organizations. ROR identifiers are designed to link research organizations to research outputs in scholarly infrastructure. Search the ROR registry at https://ror.org/search.
Last fetched from source: 2024-04-26
Creative Commons Public Domain 1.0 International licence
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