This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1084908 is the identifier for this organisation within the scheme.
Description
A supportive, informative, national networking organisation for the families, carers and professionals giving care to children and adults with Batten Disease and for promoting awareness of, and research into, the disease
Also known as
- Batten Disease Family Association
- Bdfa
- Batten Disease Family Association
- The Batten Disease Family Association
CCEW Charity number
Registered
Postcode
BD18 9GE
Website
Domain
bdfa-uk.org.uk
Latest income
£545,653 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Twitter, Facebook and Wikipedia links from Wikidata
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1084908 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Associations
AS -
Beneficiary group
BE» ChildrenBE102 -
Beneficiary group
BE» FamiliesBE103 -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» Medical researchRS101
Theme (CCEW)
-
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201 -
People With Disabilities
203
Activities (CCEW)
-
Provides Services
306 -
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308
Scale of operation
- National
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2001-02-07 |
Registered as a charity |
|
| 2004-08-31 | 56,723 | 5,364 |
| 2005-08-31 | 37,501 | 16,957 |
| 2006-08-31 | 23,070 | 14,053 |
| 2007-08-31 | 41,494 | 48,992 |
| 2008-08-31 | 98,549 | 39,770 |
| 2009-08-31 | 84,150 | 74,026 |
| 2010-08-31 | 184,455 | 87,335 |
| 2011-08-31 | 215,884 | 142,062 |
| 2012-08-31 | 248,869 | 140,269 |
| 2013-08-31 | 277,884 | 320,939 |
| 2014-08-31 | 285,060 | 266,837 |
| 2015-08-31 | 304,707 | 430,508 |
| 2016-08-31 | 328,506 | 451,799 |
| 2017-08-31 | 339,251 | 344,639 |
| 2018-08-31 | 442,245 | 506,295 |
| 2019-08-31 | 373,826 | 279,779 |
| 2020-08-31 | 274,407 | 279,174 |
| 2021-08-31 | 635,015 | 308,938 |
| 2022-08-31 | 545,653 | 554,602 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2022 £ |
2021 £ |
|
|---|---|---|
| Employees | 5 | 3 |
| Employees paid more than £60,000 | - | - |
| Volunteers | 10 | 3 |
| Trustees | 4 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
Statement of financial activities for year ended .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2022 £000s |
2021
£000s |
|
|---|---|---|
| Incoming resources | ||
| Donations and other voluntary income | 435.7 | 557.2 |
| Legacies | - | - |
| Endowments | - | - |
| Donations and legacies | 435.7 | 557.2 |
| Income from charitable activities | 2.2 | - |
| Income from other trading activities | 107.6 | 77.8 |
| Income from investments | 0.2 | 0.0 |
| Other income | - | - |
| Total | 545.7 | 635.0 |
| Expenditure | ||
| Investment management | - | - |
| Other spending on raising funds | 81.3 | 44.7 |
| Spending on raising funds | 81.3 | 44.7 |
| Grants to institutions | - | - |
| Other charitable activities | 473.3 | 264.3 |
| Charitable activities | 473.3 | 264.3 |
| Other spending | - | - |
| Total | 554.6 | 308.9 |
| Net income / (expenditure) | (8.9) | 326.1 |
Balance sheet at .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2022 £000s |
2021
£000s |
|
|---|---|---|
| Fixed assets | ||
| Tangible and intangible assets | - | - |
| Investment assets | - | - |
| - | - | |
| Current assets | ||
| Current investment assets | - | - |
| Cash | 580.1 | 628.9 |
| Other current assets | 17.2 | 0.0 |
| 597.3 | 629.0 | |
| Creditors | ||
| Amounts falling due within one year | (101.4) | (124.1) |
| Net current assets | 495.9 | 504.9 |
| Total assets less current liabilities | 495.9 | 504.9 |
| Creditors | ||
| Amounts falling due after one year | - | - |
| Net assets | 495.9 | 504.9 |
| Funds | ||
| Endowment funds | - | - |
| Restricted funds | 81.8 | 122.4 |
| Unrestricted funds | 414.1 | 382.5 |
| 495.9 | 504.9 | |
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2022 (the latest year with data available) or 2021.
View this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
CAF
CAF Resilience Fund Phase 2 |
£65,402 | Grant to Batten Disease Family Association | ||
|
The National Lottery Community Fund
National Lottery Awards for All England |
£9,140
3.901639344262295 months |
Peer Befriending Programme
Jan 2022 to Apr 2022 |
||
| True Colours Trust |
£5,000
1 year |
Sessions for siblings of children with Batten Disease – COVID19 response
Oct 2020 to Oct 2021 |
||
|
Department for Digital, Culture, Media & Sport
Coronavirus Community Support Fund |
£35,820 | Coronavirus Community Support Fund | ||
|
CAF
CAF Coronavirus Emergency Fund |
£7,722
3 months |
Grant to The Batten Disease Family Association | ||
| The Fore | £4,000 | RAFT COVID-19 response grant to The Batten Disease Family Association | ||
|
CAF
CAF Resilience Fund Phase 1 |
£30,000 | Grant to Batten Disease Family Association | ||
|
Quartet Community Foundation
Donor Directed |
£100 | Grant to Batten Disease Family Association |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- The Fore (1 grant) | Licence | GrantNav Publisher page
- Cabinet Office (1 grant) | Licence | GrantNav Publisher page
- CAF (3 grants) | Licence | GrantNav Publisher page
- Quartet Community Foundation (1 grant) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (1 grant) | Licence | GrantNav Publisher page
- True Colours Trust (1 grant) | Licence | GrantNav Publisher page
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Last fetched from source: 2024-04-19
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Last fetched from source: 2024-04-18
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