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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 4 active records and 0 inactive records, from 4 data sources.

The best identifier for this organisation is GB-CHC-1186647 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1186647 is the identifier for this organisation within the scheme.

Description

Our Vision: Every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.Our Mission: The Smith-Magenis Syndrome (SMS) Foundation UK shall be at the heart of our community of individuals, families, carers and professionals living and working with Smith-Magenis Syndrome and we will be the first point of contact for those seeking information

Also known as

  • The Smith-Magenis Syndrome (S.M.S.) Foundation UK
  • The Smith-Magenis Syndrome (SMS) Foundation UK CIO
  • The Smith-Magenis Syndrome (SMS) Foundation UK
  • The Smith-Magenis Syndrome (SMS) Foundation UK CIO

CCEW Charity number

1186647

Registered

Postcode

SN9 5AF

Website

smith-magenis.org

Domain

smith-magenis.co.uk

Latest income

£82,983 (on )

This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Locations

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Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Registered Office in the UK

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Linked records

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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 4 active records and 0 inactive records, from 4 data sources.

The best identifier for this organisation is GB-CHC-1186647 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1186647 is the identifier for this organisation within the scheme.

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Themes and activities

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This organisation has been classified using different categories:

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Services for people with disabilities D13

UK Charity Activity Tags

These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.

Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.

  • Beneficiary group BE » Families BE103
  • Health HE » Health condition HE200

Theme (CCEW)

  • General Charitable Purposes 101
  • The Advancement Of Health Or Saving Of Lives 103
  • Disability 104

Beneficiaries (CCEW)

  • People With Disabilities 203

Activities (CCEW)

  • Makes Grants To Individuals 301
  • Makes Grants To Organisations 302
  • Provides Services 306
  • Provides Advocacy/advice/information 307
  • Sponsors Or Undertakes Research 308

Scale of operation

  • National

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Charity financial history

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Year ending Income (£) Spending (£)
2019-11-28 CIO registration
2020-06-30 13,388 7,696
2021-06-30 78,468 98,206
2022-06-30 105,691 135,109
2023-06-30 82,983 89,727
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Charity people

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2023
£
2022
£
Employees paid more than £60,000 - -
Volunteers 18 14
Trustees 7
Employees
Volunteers

Data on employees is only available for financial years where the charity's income was more than £500,000.

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Income from government

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According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Grants received

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View this organisation's grants on GrantNav.

Date Funder Amount awarded Description
The National Lottery Community Fund £9,990 SMS Community Wellbeing Service
The National Lottery Community Fund
National Lottery Awards for All Scotland
£8,955
11 months
SMS rare disease support Scotland
May 2023 to Apr 2024
The Foyle Foundation
Small Grants Scheme
£5,000 Small Grants
Co-operative Group £3,899 Grant to The Smith-Magenis Syndrome (SMS) Foundation UK
Foundation Scotland
Response Recovery and Resilience (CLOSED)
£3,500
3 months
Grant to Smith-Magenis Syndrome (SMS) Foundation
Apr 2021 to Jul 2021
Foundation Scotland
Response Recovery and Resilience (CLOSED)
£3,307
1 year
Grant to Smith-Magenis Syndrome (SMS) Foundation
Feb 2020 to Dec 2021
Department for Digital, Culture, Media & Sport
Coronavirus Community Support Fund
£9,437 Coronavirus Community Support Fund
Foundation Scotland
Response Recovery and Resilience (CLOSED)
£2,507 Grant to Smith-Magenis Syndrome (SMS) Foundation
The National Lottery Community Fund
National Lottery Awards for All Scotland
£7,912
2 months
SMS COVID-19 Community Cohesion
Jul 2020 to Sep 2020

Data source

Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.

National Lottery grants data comes from the Department of Culture, Media and Sport who publish the National Lottery grants database.

This data is used under the Open Government Licence. Grants that are also published under 360Giving have been removed to ensure there is not duplication.

  • The National Lottery (1 grant) | Licence

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

GB-CHC-1186647

Data sources

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