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Organisation record

FOP Friends

A Registered Charity based in England

Active Registered Charity (Scotland) Cross Border Charity Trust

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GB-SC-SC046950

This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.

The best identifier for this organisation is GB-CHC-1147704 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC046950 is the identifier for this organisation within the scheme.

Description

The objects of the charity ('the objects') are: The relief of distress and sickness for those affected by Fibrodysplasia Ossificans Progressiva (FOP) a tragic, degenerative and debilitating condition and to improve the lives of sufferers and their families. To raise public awareness and understanding of Fibrodysplasia Ossificans Progressiva (FOP) and to promote education and research into the study and cure of FOP and related conditions. To support charities and organisations undertaking charitable activities in both the UK and abroad who fund research, provide help, support, care and treatment for people affected by FOP and related conditions. To support organisations researching treatments and a cure for FOP and related conditions. The charity will carry out these objects by: ? Funding research related to the treatment and cure of FOP and related conditions. ? Funding organisations or charities in researching, providing help, support, care or treatment of FOP and related conditions.

OSCR Charity number

SC046950

Registered

Postcode

M33 3FR

Website

fopfriends.com

Latest income

£231,413 (on )

This organisation record is based on data from Office of Scottish Charity Regulator Charity Register Download published by Office of Scottish Charity Regulator.

FOP Friends

GB-SC-SC046950

Locations

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Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Registered Office in the UK

FOP Friends

GB-SC-SC046950

Linked records

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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.

The best identifier for this organisation is GB-CHC-1147704 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC046950 is the identifier for this organisation within the scheme.

FOP Friends (this record)

Organisation record from Office of Scottish Charity Regulator
Last updated 2024-06-20

Fop Friends

Organisation record from Charity Commission for England and Wales
Last updated 2024-06-26

FOP Friends

GB-SC-SC046950

Themes and activities

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This organisation has been classified using different categories:

Activities (OSCR)

  • It makes grants, donations, loans, gifts or pensions to individuals
  • It carries out activities or services itself

Beneficiaries (OSCR)

  • Children or young people
  • Older people
  • People with disabilities or health problems

Purposes (OSCR)

  • The advancement of education
  • The relief of those in need by reason of age, ill health, disability, financial hardship or other disadvantage

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Scientific research and testing services K10

UK Charity Activity Tags

These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.

Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.

  • Beneficiary group BE » Families BE103
  • Charity and VCS support CV
  • Education ED
  • Research RS

FOP Friends

GB-SC-SC046950

Charity financial history

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Year ending Income (£) Spending (£)
2016-11-02 Registered as a charity
2018-03-01 158,969 118,540
2019-03-01 123,484 162,898
2020-03-01 141,339 116,474
2021-03-01 179,763 136,207
2022-03-01 245,252 162,748
2023-03-01 231,413 141,357
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

FOP Friends

GB-SC-SC046950

Grants received

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View this organisation's grants on GrantNav.

Date Funder Amount awarded Description
The National Lottery Community Fund
National Lottery Awards for All England 		£9,850
1.639344262295082 months 		FOP Friends Conference and Family Gathering 2022
May 2022 to Jun 2022
The National Lottery Community Fund
National Lottery Awards for All 		£9,981
0.06557377049180328 months 		Biennial Conference and Family Gathering
May 2020
The National Lottery Community Fund
National Lottery Awards for All 		£9,625
1 year 		Biennial Conference & Family Gathering
Dec 2017 to Dec 2018
The National Lottery Community Fund
Awards for All 		£8,972
1 year 		FOP Friends Family Symposium May 2016
Dec 2015 to Dec 2016

Data source

Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.

FOP Friends

GB-SC-SC046950

Data sources

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Last fetched from source: 2024-06-26

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Office of Scottish Charity Regulator

Office of Scottish Charity Regulator Charity Register Download

Last fetched from source: 2024-06-20

Open Government Licence v2.0 | Access data | Download data

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Charity Commission for England and Wales

Registered charities in England and Wales

Data download service provided by the Charity Commission

Last fetched from source: 2024-06-26

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