This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 1 inactive record, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 287034 is the identifier for this organisation within the scheme.
Description
Through a team of specialist advisors provides individual advocacy support to children and adults suffering from Mucopolysaccharide and related diseases. Organises specialist clinics, conferences, workshops and regional support activities. Raises funds to raise awareness and support research into MPS and related diseases.
Also known as
- M P S Society - Society for M P S Diseases
- The Society for Mucopolysaccharide Diseases
- Society for Mucopolysaccharide Diseases
CCEW Charity number
Registered
Removed
Latest income
£1,814,184 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Twitter, Facebook and Wikipedia links from Wikidata
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 1 inactive record, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 287034 is the identifier for this organisation within the scheme.
The Society for Mucopolysaccharide Diseases (this record) (inactive)
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Research
RS
Theme (CCEW)
-
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
People With Disabilities
203
Activities (CCEW)
-
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308
Scale of operation
- National
The Society for Mucopolysaccharide Diseases
GB-CHC-287034Charity financial history
Back to contents| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 1983-05-25 |
Registered as a charity |
|
| 2007-10-31 | 1,119,857 | 1,214,759 |
| 2008-10-31 | 1,231,810 | 1,423,396 |
| 2009-10-31 | 1,131,401 | 1,184,239 |
| 2010-10-31 | 1,814,184 | 1,292,226 |
| 2012-01-24 |
Removed |
|
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2010 £ |
2009 £ |
|
|---|---|---|
| Employees | 10 | 10 |
| Employees paid more than £60,000 | - | - |
| Volunteers | 80 | 150 |
| Trustees | - |
Data on employees is only available for financial years where the charity's income was more than £500,000.
The Society for Mucopolysaccharide Diseases
GB-CHC-287034Statement of Financial Activities
Back to contentsStatement of financial activities for year ended .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2010 £000s |
2009
£000s |
|
|---|---|---|
| Incoming resources | ||
| Donations and other voluntary income | 136.6 | 458.4 |
| Legacies | 100.0 | 25.0 |
| Endowments | - | - |
| Donations and legacies | 236.6 | 483.4 |
| Income from charitable activities | 1,434.1 | 502.6 |
| Income from other trading activities | 136.3 | 129.1 |
| Income from investments | 1.2 | 10.4 |
| Other income | 6.1 | 5.9 |
| Total | 1,814.2 | 1,131.4 |
| Expenditure | ||
| Investment management | - | - |
| Other spending on raising funds | - | - |
| Spending on raising funds | - | - |
| Grants to institutions | - | - |
| Other charitable activities | 1,103.2 | 981.7 |
| Charitable activities | 1,103.2 | 981.7 |
| Other spending | - | - |
| Total | 1,292.2 | 1,184.2 |
| Net income / (expenditure) | 522.0 | (52.8) |
Balance sheet at .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2010 £000s |
2009
£000s |
|
|---|---|---|
| Fixed assets | ||
| Tangible and intangible assets | 788.7 | 808.1 |
| Investment assets | - | - |
| 788.7 | 808.1 | |
| Current assets | ||
| Current investment assets | 1,114.6 | 544.9 |
| Cash | 1.9 | 4.1 |
| Other current assets | 35.0 | 100.0 |
| 1,151.5 | 649.1 | |
| Creditors | ||
| Amounts falling due within one year | (143.3) | (80.3) |
| Net current assets | 1,008.1 | 568.8 |
| Total assets less current liabilities | 1,796.9 | 1,376.9 |
| Creditors | ||
| Amounts falling due after one year | (240.5) | (342.5) |
| Net assets | 1,556.4 | 1,034.4 |
| Funds | ||
| Endowment funds | - | - |
| Restricted funds | 958.0 | 525.4 |
| Unrestricted funds | 598.4 | 509.0 |
| 1,556.4 | 1,034.4 | |
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2010 (the latest year with data available) or 2009.
View this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
The National Lottery Community Fund
National Lottery Awards for All England |
£10,000
11.934426229508198 months |
Counselling for young people diagnosed with an MPS or related disease
Jul 2022 to Jun 2023 |
||
|
The National Lottery Community Fund
RC England Wide |
£195,000
2 years |
Rare but not alone- Connecting the MPS Community
Apr 2021 to Mar 2024 |
||
|
The National Lottery Community Fund
RC England Wide |
£38,000
6 months |
Advocacy and support- Covid 19 response
May 2020 to Nov 2020 |
||
|
Masonic Charitable Foundation
Large Grant |
£62,725 | MCF Large Grant | ||
|
The National Lottery Community Fund
Awards for All Northern Ireland |
£636
1 year |
Society for Mucopolysaccharide Diseases
Nov 2017 to Nov 2018 |
||
| The Rayne Foundation |
£40,000
2 years |
Grant to The Society for Mucopolysaccharide Diseases | ||
|
The National Lottery Community Fund
Awards for All |
£3,500
1 year |
Training for volunteers
Dec 2005 to Dec 2006 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Masonic Charitable Foundation (1 grant) | Licence | GrantNav Publisher page
- The Rayne Foundation (1 grant) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (5 grants) | Licence | GrantNav Publisher page
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