This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 1 inactive record, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1166365 is the identifier for this organisation within the scheme.
Description
CamRARE build networks to improve outcomes for people affected by rare diseases. Regionally we support affected families through community activities. We provide a platform to showcase rare disease research, technologies, treatments and care through events like RAREsummit & RAREfest. We hold a Companies Forum to educate and exchange knowledge on rare disease. We undertake and support research.
Also known as
- Cambridge Rare Disease Network
- CRDN
- Cambridge Rare Disease Network
CCEW Charity number
Company number
Registered
Postcode
CB22 5NE
Website
Latest income
£141,001 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 1 inactive record, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1166365 is the identifier for this organisation within the scheme.
Cambridge Rare Disease Network (this record)
Cambridge Rare Disease Network (inactive)
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Associations
AS» Community associationAS101 -
Beneficiary group
BE» FamiliesBE103 -
Economic and community development
EC» Community developmentEC101 -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» Medical researchRS101
Theme (CCEW)
-
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201 -
People With Disabilities
203 -
Other Charities Or Voluntary Bodies
205 -
The General Public/mankind
207
Activities (CCEW)
-
Provides Services
306 -
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308 -
Acts As An Umbrella Or Resource Body
309
Scale of operation
- National
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2016-04-05 |
Registered as a charity |
|
| 2016-09-30 | 48,625 | 48,015 |
| 2017-09-30 | 72,673 | 60,299 |
| 2018-09-30 | 104,243 | 88,187 |
| 2019-09-30 | 240,906 | 137,047 |
| 2020-12-31 | 163,000 | 164,000 |
| 2021-12-31 | 163,501 | 103,210 |
| 2022-12-31 | 141,001 | 123,309 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2022 £ |
2021 £ |
|
|---|---|---|
| Employees paid more than £60,000 | - | - |
| Volunteers | 20 | 20 |
| Trustees | 7 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
| 2022 £ |
2021 £ |
|
|---|---|---|
| Contracts with government | ||
| None recorded | ||
| Government grants | ||
| Income from government grants | 7,800 | - |
| Government grants as % of total income | 5.5% | - |
| Number of government grants | 1 | - |
View this organisation's grants on GrantNav.
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Cabinet Office (1 grant) | Licence | GrantNav Publisher page
- Cambridgeshire Community Foundation (3 grants) | Licence | GrantNav Publisher page
- People's Health Trust (1 grant) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (3 grants) | Licence | GrantNav Publisher page
National Lottery grants data comes from the Department of Culture, Media and Sport who publish the National Lottery grants database.
This data is used under the Open Government Licence. Grants that are also published under 360Giving have been removed to ensure there is not duplication.
- The National Lottery (1 grant) | Licence
Find that Charity
Find that Charity Relationship Lookups
Last fetched from source: 2024-06-23
| Access data
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Source for record links:
Companies House
Free Company Data Product
The Free Company Data Product is a downloadable data snapshot containing basic company data of live companies on the register. This snapshot is provided as ZIP files containing data in CSV format and is split into multiple files for ease of downloading.
Last fetched from source: 2024-06-22
Open Government Licence v3.0
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Download data
Source for records:
Charity Commission for England and Wales
Registered charities in England and Wales
Data download service provided by the Charity Commission
Last fetched from source: 2024-06-23
Open Government Licence v2.0
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