This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1165651 is the identifier for this organisation within the scheme.
Description
We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
Also known as
- Ring20 Research and Support UK CIO
- Ring 20 Research and Support UK
- Ring20 Research & Support UK CIO
- Ring20 Research and Support UK CIO
CCEW Charity number
Registered
Postcode
BH16 6FA
Website
Domain
ring20researchsupport.co.uk
Latest income
£40,340 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1165651 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Beneficiary group
BE
» FamiliesBE103
-
Charity and VCS support
CV
» FundraisingCV102
-
Health
HE
-
Health
HE
» Health conditionHE200
-
Research
RS
-
Research
RS
» Medical researchRS101
Theme (CCEW)
-
The Advancement Of Health Or Saving Of Lives
103
-
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201
-
People With Disabilities
203
Activities (CCEW)
-
Provides Services
306
-
Provides Advocacy/advice/information
307
Scale of operation
- National
Year ending | Income (£) | Spending (£) |
---|---|---|
2016-02-19 |
CIO registration |
|
2017-03-31 | 19,508 | 8,283 |
2018-03-31 | 18,370 | 13,113 |
2019-03-31 | 69,742 | 6,409 |
2020-03-31 | 24,731 | 21,503 |
2021-03-31 | 43,839 | 12,779 |
2022-03-31 | 40,476 | 32,453 |
2023-03-31 | 40,340 | 45,324 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
2023 £ |
2022 £ |
|
---|---|---|
Employees paid more than £60,000 | - | - |
Volunteers | 4 | 7 |
Trustees | 5 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.
View this organisation's grants on GrantNav.
Date | Funder | Amount awarded | Description | |
---|---|---|---|---|
Brian Mercer Trust
Prevention and Relief of Human Suffering |
£12,500
1 year |
Grant to Ring 20 Research and Support UK | ||
London Catalyst
Partners for Health |
£2,500 | Ring20 Research and Support UK CIO - 1 | ||
Department for Digital, Culture, Media & Sport
Coronavirus Community Support Fund |
£7,950 | Coronavirus Community Support Fund | ||
The National Lottery Community Fund | £10,000 | Ring20 Rare Disease Social Media Support | ||
The National Lottery Community Fund
National Lottery Awards for All |
£10,000
1 year |
Ring20 Rare Disease Social Media Support
Mar 2019 to Mar 2020 |
||
The National Lottery Community Fund
Awards for All |
£9,994
1 year |
Improving support services for families affected by r(20) syndrome
Sep 2016 to Sep 2017 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Brian Mercer Trust (1 grant) | Licence | GrantNav Publisher page
- Cabinet Office (1 grant) | Licence | GrantNav Publisher page
- London Catalyst (1 grant) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (2 grants) | Licence | GrantNav Publisher page
National Lottery grants data comes from the Department of Culture, Media and Sport who publish the National Lottery grants database.
This data is used under the Open Government Licence. Grants that are also published under 360Giving have been removed to ensure there is not duplication.
- The National Lottery (1 grant) | Licence
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Last fetched from source: 2024-05-03
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