This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1157027 is the identifier for this organisation within the scheme.
Description
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Also known as
- Eds UK
- The Ehlers-Danlos Support UK
- Ehlers-Danlos Support UK
- The Ehlers-Danlos Support UK
CCEW Charity number
Company number
Registered
Postcode
E1 6BD
Website
Domain
ehlers-danlos.org
Latest income
£423,719 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1157027 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Grant-making foundations
H10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Charity and VCS support
CV» FundraisingCV102 -
Research
RS -
Research
RS» Medical researchRS101
Theme (CCEW)
-
General Charitable Purposes
101 -
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
People With Disabilities
203
Activities (CCEW)
-
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308
Scale of operation
- National
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2014-05-13 |
Registered as a charity |
|
| 2015-03-31 | 234,781 | 194,595 |
| 2016-03-31 | 329,538 | 334,655 |
| 2017-03-31 | 363,376 | 369,936 |
| 2018-03-31 | 393,082 | 426,692 |
| 2019-03-31 | 434,460 | 285,352 |
| 2020-03-31 | 446,843 | 334,342 |
| 2021-03-31 | 406,887 | 405,498 |
| 2022-03-31 | 483,707 | 496,377 |
| 2023-03-31 | 423,719 | 537,080 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2023 £ |
2022 £ |
|
|---|---|---|
| Employees paid more than £60,000 | - | - |
| Volunteers | 70 | 70 |
| Trustees | 10 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.
Received 13 grants. Showing most recent 10 grants.
View this organisation's grants on GrantNav.
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Garfield Weston Foundation (3 grants) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (7 grants) | Licence | GrantNav Publisher page
- Woodward Charitable Trust (1 grant) | Licence | GrantNav Publisher page
National Lottery grants data comes from the Department of Culture, Media and Sport who publish the National Lottery grants database.
This data is used under the Open Government Licence. Grants that are also published under 360Giving have been removed to ensure there is not duplication.
- The National Lottery (2 grants) | Licence
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Last fetched from source: 2024-07-03
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Last fetched from source: 2024-06-29
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Last fetched from source: 2024-06-27
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Charity Commission for England and Wales
Registered charities in England and Wales
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Last fetched from source: 2024-07-03
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