This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1132271 is the identifier for this organisation within the scheme.
Description
We are the national charity for people experiencing Glycogen Storage Disease, their families and carers as well as for medical professionals working in this field. As the UKs main charity in this area, we support people with the disease, promote research and raise public awareness of GSDs.
Also known as
- Agsd (UK)
- Association for Glycogen Storage Disease (UK) Limited
- Association for Glycogen Storage Disease (UK) Limited
- Pompe UK
CCEW Charity number
Company number
Registered
Postcode
SO50 0QT
Website
Domain
agsd.org.uk
Latest income
£143,716 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
Registered Office in the UK
Association for Glycogen Storage Disease (UK) Limited
GB-CHC-1132271Linked records
Back to contentsThis organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1132271 is the identifier for this organisation within the scheme.
Association for Glycogen Storage Disease (UK) Limited
GB-CHC-1132271Themes and activities
Back to contentsThis organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Associations
AS -
Beneficiary group
BE» FamiliesBE103 -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» Medical researchRS101
Theme (CCEW)
-
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201 -
People With Disabilities
203 -
Other Defined Groups
206
Activities (CCEW)
-
Makes Grants To Individuals
301 -
Makes Grants To Organisations
302 -
Provides Human Resources
304 -
Provides Services
306 -
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308 -
Acts As An Umbrella Or Resource Body
309
Scale of operation
- National
Association for Glycogen Storage Disease (UK) Limited
GB-CHC-1132271Charity financial history
Back to contents| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2009-10-22 |
Registered as a charity |
|
| 2011-03-31 | 47,091 | 76,186 |
| 2012-03-31 | 146,544 | 140,187 |
| 2013-03-31 | 72,230 | 121,669 |
| 2014-03-31 | 102,035 | 122,511 |
| 2015-03-31 | 128,306 | 113,327 |
| 2016-03-31 | 137,179 | 116,609 |
| 2017-03-31 | 300,753 | 265,960 |
| 2018-03-31 | 299,425 | 232,536 |
| 2019-03-31 | 167,640 | 228,035 |
| 2020-03-31 | 205,802 | 217,134 |
| 2021-03-31 | 122,881 | 141,668 |
| 2022-03-31 | 131,749 | 144,848 |
| 2023-03-31 | 143,716 | 156,761 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
Association for Glycogen Storage Disease (UK) Limited
GB-CHC-1132271Charity people
Back to contents| 2023 £ |
2022 £ |
|
|---|---|---|
| Employees paid more than £60,000 | - | - |
| Volunteers | 37 | 60 |
| Trustees | 7 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
Association for Glycogen Storage Disease (UK) Limited
GB-CHC-1132271Income from government
Back to contentsAccording to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.
Association for Glycogen Storage Disease (UK) Limited
GB-CHC-1132271Grants received
Back to contentsView this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
The National Lottery Community Fund
Awards for All |
£9,800
1 year |
AGSD-UK Educational Literature Production
Aug 2013 to Aug 2014 |
||
|
The National Lottery Community Fund
Awards for All |
£9,500
1 year |
Production of AGSD-UK short information film for distribution
Oct 2011 to Oct 2012 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- The National Lottery Community Fund (2 grants) | Licence | GrantNav Publisher page
Companies House
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Last fetched from source: 2024-06-29
Open Government Licence v3.0
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|
Download data
Source for records:
Charity Commission for England and Wales
Registered charities in England and Wales
Data download service provided by the Charity Commission
Last fetched from source: 2024-06-29
Open Government Licence v2.0
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