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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.

The best identifier for this organisation is GB-CHC-1114195 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1114195 is the identifier for this organisation within the scheme.

Description

Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.

Also known as

  • Genetic Alliance UK Ltd
  • Genetic Interest Group
  • Genetic Interest Group Limited
  • Genetic Alliance UK
  • Genetic Alliance UK Ltd
  • Rare Disease UK
  • Rduk
  • Swan UK

CCEW Charity number

1114195

Company number

05772999

Registered

Postcode

E17 6DS

Website

geneticalliance.org.uk

Domain

geneticalliance.org.uk

Latest income

£741,859 (on )

This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.

Genetic Alliance UK Ltd

GB-CHC-1114195

Locations

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Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Registered Office in the UK

Genetic Alliance UK Ltd

GB-CHC-1114195

Linked records

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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.

The best identifier for this organisation is GB-CHC-1114195 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1114195 is the identifier for this organisation within the scheme.

Genetic Alliance UK Ltd (this record)

Organisation record from Charity Commission for England and Wales
Last updated 2024-04-26

Genetic Alliance UK Ltd

Organisation record from Office of Scottish Charity Regulator
Last updated 2024-04-25

Genetic Alliance UK Ltd

Organisation record from Companies House
Last updated 2024-04-20

Genetic Alliance UK Ltd

GB-CHC-1114195

Themes and activities

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This organisation has been classified using different categories:

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Scientific research and testing services K10

UK Charity Activity Tags

These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.

Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.

  • Animals AN
  • Charity and VCS support CV
  • Health HE » Health condition HE200

Theme (CCEW)

  • General Charitable Purposes 101
  • Education/training 102
  • The Advancement Of Health Or Saving Of Lives 103
  • Disability 104

Beneficiaries (CCEW)

  • Children/young People 201
  • Elderly/old People 202
  • People With Disabilities 203
  • Other Charities Or Voluntary Bodies 205
  • Other Defined Groups 206
  • The General Public/mankind 207

Activities (CCEW)

  • Provides Advocacy/advice/information 307
  • Acts As An Umbrella Or Resource Body 309

Scale of operation

  • National

Genetic Alliance UK Ltd

GB-CHC-1114195

Charity financial history

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Year ending Income (£) Spending (£)
2006-05-15 Registered as a charity
2007-03-31 0
2008-03-31 685,960 511,307
2009-03-31 574,017 604,063
2010-03-31 569,790 580,189
2011-03-31 611,009 737,915
2012-03-31 792,755 699,625
2013-03-31 721,041 678,477
2014-03-31 767,037 630,295
2015-03-31 836,292 740,949
2016-03-31 861,043 845,387
2017-03-31 1,048,394 794,205
2018-03-31 758,973 889,594
2019-03-31 750,554 994,688
2020-03-31 804,434 1,005,274
2021-03-31 939,440 808,907
2022-03-31 713,568 762,424
2023-03-31 741,859 769,204
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

Genetic Alliance UK Ltd

GB-CHC-1114195

Charity people

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2023
£
2022
£
Employees 16 17
Employees paid more than £60,000 1 1
Volunteers 25 15
Trustees 12
Employees
Volunteers

Data on employees is only available for financial years where the charity's income was more than £500,000.

Genetic Alliance UK Ltd

GB-CHC-1114195

Statement of Financial Activities

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Statement of financial activities for year ended .

Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.

2023
£000s
2022
£000s
Incoming resources
Donations and other voluntary income 681.7 655.5
Legacies 8.3 2.0
Endowments - -
Donations and legacies 690.0 657.5
Income from charitable activities 51.7 56.1
Income from other trading activities - -
Income from investments 0.1 -
Other income - -
Total 741.9 713.6
Expenditure
Investment management - -
Other spending on raising funds 94.4 95.4
Spending on raising funds 94.4 95.4
Grants to institutions - -
Other charitable activities 674.8 667.0
Charitable activities 674.8 667.0
Other spending - -
Total 769.2 762.4
Net income / (expenditure) (27.3) (48.9)

Genetic Alliance UK Ltd

GB-CHC-1114195

Balance sheet

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Balance sheet at .

Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.

2023
£000s
2022
£000s
Fixed assets
Tangible and intangible assets 4.7 1.0
Investment assets - -
4.7 1.0
Current assets
Current investment assets - -
Cash 141.5 199.3
Other current assets 53.4 66.1
194.8 265.4
Creditors
Amounts falling due within one year (75.9) (115.4)
Net current assets 119.0 150.0
Total assets less current liabilities 123.7 151.0
Creditors
Amounts falling due after one year - -
Net assets 123.7 151.0
Funds
Endowment funds - -
Restricted funds 30.7 16.4
Unrestricted funds 93.0 134.7
123.7 151.0

Genetic Alliance UK Ltd

GB-CHC-1114195

Income from government

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2023
£
2022
£
Contracts with government
None recorded
Government grants
Income from government grants 79,817 89,357
Government grants as % of total income 10.8% 12.5%
Number of government grants 2 3

Genetic Alliance UK Ltd

GB-CHC-1114195

Grants received

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Received 19 grants. Showing most recent 10 grants.

View this organisation's grants on GrantNav.

Date Funder Amount awarded Description
The National Lottery Community Fund
RC England Wide
£267,314 SWAN UK England
The Clothworkers' Foundation
Small Grants Programme
£3,900 Grant to Genetic Alliance UK Ltd
Sir Jules Thorn Charitable Trust £1,250 Genetic Alliance UK Ltd - 16/07/21
The National Lottery Community Fund
Coronavirus Community Support Fund – Standard
£40,052
6 months
COVID-19 Support Programme for genetic rare and undiagnosed community
Jan 2021 to Jul 2021
The National Lottery Community Fund
People and Places 3
£162,821
3 years
SWAN UK (Syndromes Without A Name) Wales
Sep 2020 to Sep 2023
City Bridge Trust
COVID19 London Community Response Fund - Wave 2
£25,700 Grant to Genetic Alliance UK
Scottish Government
Wellbeing Fund - Open call - Round 1
£25,415 Genetic Alliance UK Ltd
The National Lottery Community Fund
National Lottery Awards for All
£9,975
11 months
SWAN UK Dads
May 2020 to Apr 2021
The National Lottery Community Fund
National Lottery Awards for All
£9,900
11 months
Rare Resources Roadshow - Scotland
May 2020 to Apr 2021
The National Lottery Community Fund
Reaching Communities
£312,634
3 years
SWAN UK (syndromes without a name) England
Sep 2016 to Sep 2019

Data source

Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.

Genetic Alliance UK Ltd

GB-CHC-1114195

Data sources

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