This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1106008 is the identifier for this organisation within the scheme.
Description
A charity to promote awareness, research & prevention of leukodystrophy.Alex, The Leukodystrophy Charity enables sufferers of leukodystrophy worldwide a forum to come together to support and advise each other. We provide financial & emotional support as well as practical advice & updates on research innovations, promote and fund research & education for medical professionals.
Also known as
- Ald Life
- ALD Life
- Alex The Leukodystrophy Charity
- Alex, The Leukodystrophy Charity
CCEW Charity number
Company number
Registered
Postcode
SE15 5EB
Website
Domain
alextlc.org
Latest income
£892,298 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
Area of operation outside the UK
- Andorra
- United Arab Emirates
- Afghanistan
- Antigua and Barbuda
- Anguilla
- Albania
- Armenia
- Angola
- Antarctica
- Argentina
- American Samoa
- Austria
- Australia
- Aruba
- Azerbaijan
- Bosnia and Herzegovina
- Barbados
- Bangladesh
- Belgium
- Burkina Faso
- Bulgaria
- Bahrain
- Burundi
- Benin
- Saint Barthélemy
- Bermuda
- Brunei Darussalam
- Bolivia, Plurinational State of
- Brazil
- Bahamas
- Bhutan
- Botswana
- Belarus
- Belize
- Canada
- Cocos (Keeling) Islands
- Congo, The Democratic Republic of the
- Central African Republic
- Congo
- Switzerland
- Côte d'Ivoire
- Cook Islands
- Chile
- Cameroon
- China
- Colombia
- Costa Rica
- Cuba
- Cabo Verde
- Christmas Island
- Cyprus
- Czechia
- Germany
- Djibouti
- Denmark
- Dominica
- Dominican Republic
- Algeria
- Ecuador
- Estonia
- Egypt
- Eritrea
- Spain
- Ethiopia
- Finland
- Fiji
- Falkland Islands (Malvinas)
- Micronesia, Federated States of
- Faroe Islands
- France
- Gabon
- Grenada
- Georgia
- French Guiana
- Guernsey
- Ghana
- Gibraltar
- Greenland
- Gambia
- Guinea
- Guadeloupe
- Equatorial Guinea
- Greece
- South Georgia and the South Sandwich Islands
- Guatemala
- Guam
- Guinea-Bissau
- Guyana
- Hong Kong
- Honduras
- Croatia
- Haiti
- Hungary
- Indonesia
- Ireland
- Israel
- Isle of Man
- India
- British Indian Ocean Territory
- Iraq
- Iran, Islamic Republic of
- Iceland
- Italy
- Jersey
- Jamaica
- Jordan
- Japan
- Kenya
- Kyrgyzstan
- Cambodia
- Kiribati
- Comoros
- Saint Kitts and Nevis
- Korea, Democratic People's Republic of
- Korea, Republic of
- Kuwait
- Cayman Islands
- Kazakhstan
- Lao People's Democratic Republic
- Lebanon
- Saint Lucia
- Liechtenstein
- Sri Lanka
- Liberia
- Lesotho
- Lithuania
- Luxembourg
- Latvia
- Libya
- Morocco
- Monaco
- Moldova, Republic of
- Montenegro
- Madagascar
- Marshall Islands
- North Macedonia
- Mali
- Myanmar
- Mongolia
- Macao
- Northern Mariana Islands
- Martinique
- Mauritania
- Montserrat
- Malta
- Mauritius
- Maldives
- Malawi
- Mexico
- Malaysia
- Mozambique
- Namibia
- New Caledonia
- Niger
- Norfolk Island
- Nigeria
- Nicaragua
- Netherlands
- Norway
- Nepal
- Nauru
- Niue
- New Zealand
- Oman
- Panama
- Peru
- French Polynesia
- Papua New Guinea
- Philippines
- Pakistan
- Poland
- Saint Pierre and Miquelon
- Pitcairn
- Puerto Rico
- Palestine, State of
- Portugal
- Palau
- Paraguay
- Qatar
- Réunion
- Romania
- Serbia
- Russian Federation
- Rwanda
- Saudi Arabia
- Solomon Islands
- Seychelles
- Sudan
- Sweden
- Singapore
- Saint Helena, Ascension and Tristan da Cunha
- Slovenia
- Svalbard and Jan Mayen
- Slovakia
- Sierra Leone
- San Marino
- Senegal
- Somalia
- Suriname
- South Sudan
- Sao Tome and Principe
- El Salvador
- Sint Maarten (Dutch part)
- Syrian Arab Republic
- Eswatini
- Turks and Caicos Islands
- Chad
- Togo
- Thailand
- Tajikistan
- Tokelau
- Timor-Leste
- Turkmenistan
- Tunisia
- Tonga
- Turkey
- Trinidad and Tobago
- Tuvalu
- Taiwan, Province of China
- Tanzania, United Republic of
- Ukraine
- Uganda
- United States
- Uruguay
- Uzbekistan
- Saint Vincent and the Grenadines
- Venezuela, Bolivarian Republic of
- Virgin Islands, British
- Virgin Islands, U.S.
- Viet Nam
- Vanuatu
- Wallis and Futuna
- Samoa
- XK
- Yemen
- Mayotte
- South Africa
- Zambia
- Zimbabwe
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1106008 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Education
ED -
Research
RS
Theme (CCEW)
-
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201 -
People With Disabilities
203 -
Other Charities Or Voluntary Bodies
205 -
Other Defined Groups
206
Activities (CCEW)
-
Makes Grants To Individuals
301 -
Makes Grants To Organisations
302 -
Provides Services
306 -
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308 -
Other Charitable Activities
310
Scale of operation
- National and Overseas
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2004-09-23 |
Registered as a charity |
|
| 2005-06-30 | 15,840 | 9,575 |
| 2006-06-30 | 130,129 | 96,973 |
| 2007-06-30 | 165,151 | 172,333 |
| 2008-06-30 | 90,989 | 84,082 |
| 2009-06-30 | 136,161 | 141,863 |
| 2010-06-30 | 143,757 | 145,658 |
| 2011-06-30 | 192,592 | 193,510 |
| 2012-06-30 | 280,423 | 282,841 |
| 2013-06-30 | 334,399 | 279,440 |
| 2014-06-30 | 432,848 | 460,374 |
| 2015-06-30 | 596,786 | 577,028 |
| 2016-06-30 | 635,096 | 581,425 |
| 2017-06-30 | 571,434 | 594,622 |
| 2018-06-30 | 686,991 | 687,055 |
| 2019-06-30 | 634,704 | 638,720 |
| 2020-06-30 | 776,427 | 597,500 |
| 2021-06-30 | 731,979 | 707,107 |
| 2022-06-30 | 892,298 | 871,856 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2022 £ |
2021 £ |
|
|---|---|---|
| Employees | 25 | 24 |
| Employees paid more than £60,000 | - | - |
| Volunteers | 55 | 55 |
| Trustees | 12 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
Statement of financial activities for year ended .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2022 £000s |
2021
£000s |
|
|---|---|---|
| Incoming resources | ||
| Donations and other voluntary income | 185.7 | 249.7 |
| Legacies | - | - |
| Endowments | - | - |
| Donations and legacies | 185.7 | 249.7 |
| Income from charitable activities | - | - |
| Income from other trading activities | 702.6 | 482.2 |
| Income from investments | 0.1 | 0.0 |
| Other income | 3.9 | - |
| Total | 892.3 | 732.0 |
| Expenditure | ||
| Investment management | - | - |
| Other spending on raising funds | 658.7 | 515.2 |
| Spending on raising funds | 658.7 | 515.2 |
| Grants to institutions | - | - |
| Other charitable activities | 213.2 | 191.9 |
| Charitable activities | 213.2 | 191.9 |
| Other spending | - | - |
| Total | 871.9 | 707.1 |
| Net income / (expenditure) | 20.4 | 24.9 |
Balance sheet at .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2022 £000s |
2021
£000s |
|
|---|---|---|
| Fixed assets | ||
| Tangible and intangible assets | 43.4 | 18.2 |
| Investment assets | - | - |
| 43.4 | 18.2 | |
| Current assets | ||
| Current investment assets | - | - |
| Cash | 285.6 | 302.5 |
| Other current assets | 69.9 | 60.7 |
| 355.5 | 363.2 | |
| Creditors | ||
| Amounts falling due within one year | (38.0) | (31.4) |
| Net current assets | 317.5 | 331.8 |
| Total assets less current liabilities | 360.9 | 350.1 |
| Creditors | ||
| Amounts falling due after one year | (34.8) | (44.5) |
| Net assets | 326.0 | 305.6 |
| Funds | ||
| Endowment funds | - | - |
| Restricted funds | 75.3 | 123.5 |
| Unrestricted funds | 250.8 | 182.1 |
| 326.0 | 305.6 | |
| 2022 £ |
2021 £ |
|
|---|---|---|
| Contracts with government | ||
| None recorded | ||
| Government grants | ||
| Income from government grants | 56,289 | 147,243 |
| Government grants as % of total income | 6.3% | 20.1% |
| Number of government grants | 61 | 33 |
Received 18 grants. Showing most recent 10 grants.
View this organisation's grants on GrantNav.
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Cabinet Office (1 grant) | Licence | GrantNav Publisher page
- CAF (1 grant) | Licence | GrantNav Publisher page
- BBC Children in Need (3 grants) | Licence | GrantNav Publisher page
- City Bridge Foundation (1 grant) | Licence | GrantNav Publisher page
- Garfield Weston Foundation (3 grants) | Licence | GrantNav Publisher page
- Lloyds Bank Foundation for England and Wales (1 grant) | Licence | GrantNav Publisher page
- London Catalyst (1 grant) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (5 grants) | Licence | GrantNav Publisher page
National Lottery grants data comes from the Department of Culture, Media and Sport who publish the National Lottery grants database.
This data is used under the Open Government Licence. Grants that are also published under 360Giving have been removed to ensure there is not duplication.
- The National Lottery (2 grants) | Licence
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Last fetched from source: 2024-04-29
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