This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 4 active records and 0 inactive records, from 4 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1101971 is the identifier for this organisation within the scheme.
Description
Action Duchenne campaigns and supports research for a cure for Duchenne and Becker Muscular Dystrophy. Duchenne is a severe and progressive muscle wasting disease that leaves young people paralysed and facing early death by late teens. The Charity has launched a Registry for Duchenne patients to help to progress Clinical trials.
Also known as
- Action Duchenne Limited
- Action Duchenne
- Action Duchenne Limited
- Action Duchenne Ltd
- Parent Project UK Limited
CCEW Charity number
Company number
Registered
Postcode
SE18 6SS
Website
Domain
actionduchenne.org
Latest income
£711,864 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
- actionduchenne.org
- Charity Commission England and Wales
- CharityBase
- Giving is Great
- Companies House
- Opencorporates
Twitter, Facebook and Wikipedia links from Wikidata
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 4 active records and 0 inactive records, from 4 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1101971 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Beneficiary group
BE» Young peopleBE115 -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» Medical researchRS101
Theme (CCEW)
-
General Charitable Purposes
101 -
Education/training
102 -
The Advancement Of Health Or Saving Of Lives
103 -
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201 -
People With Disabilities
203 -
The General Public/mankind
207
Activities (CCEW)
-
Makes Grants To Individuals
301 -
Makes Grants To Organisations
302 -
Provides Services
306 -
Provides Advocacy/advice/information
307 -
Sponsors Or Undertakes Research
308
Scale of operation
- National
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2004-02-09 |
Registered as a charity |
|
| 2004-10-31 | 31,343 | 105 |
| 2005-10-31 | 244,998 | 135,243 |
| 2006-10-31 | 454,904 | 298,522 |
| 2007-10-31 | 614,161 | 429,841 |
| 2008-10-31 | 1,254,148 | 1,093,181 |
| 2009-10-31 | 1,810,785 | 1,085,565 |
| 2010-10-31 | 877,646 | 1,119,997 |
| 2011-10-31 | 726,359 | 873,004 |
| 2012-10-31 | 795,307 | 1,062,045 |
| 2013-10-31 | 732,476 | 766,235 |
| 2014-10-31 | 574,772 | 790,270 |
| 2015-10-31 | 700,682 | 765,483 |
| 2016-10-31 | 700,682 | 950,972 |
| 2017-10-31 | 775,993 | 610,091 |
| 2018-10-31 | 538,956 | 743,982 |
| 2020-03-31 | 758,434 | 781,972 |
| 2021-03-31 | 494,338 | 367,861 |
| 2022-03-31 | 562,186 | 359,863 |
| 2023-03-31 | 711,864 | 580,845 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2023 £ |
2022 £ |
|
|---|---|---|
| Employees | 9 | 8 |
| Employees paid more than £60,000 | 1 | - |
| Volunteers | 18 | 125 |
| Trustees | 4 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
Statement of financial activities for year ended .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2023 £000s |
2022
£000s |
|
|---|---|---|
| Incoming resources | ||
| Donations and other voluntary income | 293.5 | - |
| Legacies | - | 347.2 |
| Endowments | - | - |
| Donations and legacies | 293.5 | 347.2 |
| Income from charitable activities | 257.4 | 99.0 |
| Income from other trading activities | 160.9 | 114.8 |
| Income from investments | 0.0 | 0.0 |
| Other income | - | 1.2 |
| Total | 711.9 | 562.2 |
| Expenditure | ||
| Investment management | - | - |
| Other spending on raising funds | 35.7 | 75.3 |
| Spending on raising funds | 35.7 | 75.3 |
| Grants to institutions | 10.6 | 46.7 |
| Other charitable activities | 534.5 | 237.8 |
| Charitable activities | 545.1 | 284.5 |
| Other spending | - | - |
| Total | 580.8 | 359.9 |
| Net income / (expenditure) | 131.0 | 202.3 |
Balance sheet at .
Based on information provided to the Charity Commission for England and Wales in the charity's annual return. This may not exactly match the figures and categories supplied in the charity's annual accounts.
| 2023 £000s |
2022
£000s |
|
|---|---|---|
| Fixed assets | ||
| Tangible and intangible assets | 2.2 | 2.9 |
| Investment assets | 0.0 | 0.0 |
| 2.2 | 2.9 | |
| Current assets | ||
| Current investment assets | - | 11.0 |
| Cash | 631.0 | 475.9 |
| Other current assets | 0.9 | - |
| 632.0 | 487.0 | |
| Creditors | ||
| Amounts falling due within one year | (82.7) | (35.2) |
| Net current assets | 549.3 | 451.8 |
| Total assets less current liabilities | 551.4 | 454.6 |
| Creditors | ||
| Amounts falling due after one year | - | (34.2) |
| Net assets | 551.4 | 420.4 |
| Funds | ||
| Endowment funds | - | - |
| Restricted funds | 71.2 | 0.2 |
| Unrestricted funds | 480.2 | 420.2 |
| 551.4 | 420.4 | |
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.
View this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
Garfield Weston Foundation
Health |
£30,000 | Multi-Year Grant (2 Years) award | ||
|
The National Lottery Community Fund
RC England Wide |
£480,130
1 year |
All-through Support
Oct 2021 to Oct 2023 |
||
|
Garfield Weston Foundation
Health |
£30,000 | Multi-Year Grant (2 Years) award | ||
|
Department for Digital, Culture, Media & Sport
Coronavirus Community Support Fund |
£75,560 | Coronavirus Community Support Fund | ||
|
The National Lottery Community Fund
Reaching Communities |
£498,500
5 years |
Takin' Charge
Oct 2011 to Oct 2016 |
||
|
The National Lottery Community Fund
Reaching Communities |
£393,006
2 years |
Include Duchenne
Jan 2008 to Dec 2010 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Cabinet Office (1 grant) | Licence | GrantNav Publisher page
- Garfield Weston Foundation (2 grants) | Licence | GrantNav Publisher page
- The National Lottery Community Fund (3 grants) | Licence | GrantNav Publisher page
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