This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
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An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC046480 is the identifier for this organisation within the scheme.
Description
The organisation's purposes are: To advance education and health by: (a) promoting the study of pachyonychia congenita and improving the standard of knowledge of the means of prevention, diagnosis and treatment of pachyonychia congenita. (b) initiating, encouraging, supporting (whether financially or otherwise) and carrying out research and investigations into pachyonychia congenita and the treatment or cure of pachyonychia congenita and related disorders. (c) providing access to genetic testing and registration in respect of pachyonychia congenita and other rare genetic diseases. (d) organising and encouraging a community of professionals including physicians and scientists to collaborate in efforts to find effective treatments for pachyonychia congenita and related disorders. To relieve those in need due to ill health through the provision of care, support and practical assistance to sufferers of pachyonychia congenita and related disorders and assisting sufferers of pachyonychia congenita and related disorders to live better, more fulfilled lives through the facilitation of a range of initiatives including those directed towards social inclusion.
Also known as
- PC Project Europe / Pachyonychia Congenita Project / PC Project
OSCR Charity number
Registered
Postcode
DD2 2AY
Website
Latest income
£18,735 (on )
This organisation record is based on data from Office of Scottish Charity Regulator Charity Register Download published by Office of Scottish Charity Regulator.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC046480 is the identifier for this organisation within the scheme.
This organisation has been classified using different categories:
Activities (OSCR)
- It makes grants, donations, loans, gifts or pensions to individuals
- It makes grants, donations or gifts to organisations
- It carries out activities or services itself
Beneficiaries (OSCR)
- People with disabilities or health problems
Purposes (OSCR)
- The advancement of education
- The advancement of health
- The relief of those in need by reason of age, ill health, disability, financial hardship or other disadvantage
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Specialized outpatient care centres
C12
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Education
ED -
Health
HE -
Research
RS -
Social welfare
SW» Social activitiesSW107
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2016-04-15 |
Registered as a charity |
|
| 2017-04-30 | 62,974 | 47,467 |
| 2018-04-30 | 117,664 | 113,449 |
| 2019-04-30 | 54,359 | 72,261 |
| 2020-04-30 | 13,242 | 2,412 |
| 2021-04-30 | 5,615 | 216 |
| 2022-04-30 | 7,349 | 216 |
| 2023-04-30 | 18,735 | 306 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
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Last fetched from source: 2024-05-21
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