This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC045645 is the identifier for this organisation within the scheme.
Description
The organisations purposes are: The Saving of Lives by funding and promoting research that will lead to new understanding and treatments, and brings us closer to a cure for the rare medical condition ROHHAD The advancement of health by funding and promoting research that will lead to new understanding and treatments, and brings us closer to a cure for the rare medical condition ROHHAD. The relief of those in need by providing support for those suffering with ROHHAD, their carers, families and siblings. The advancement of Education by funding and promoting research that will lead to new understanding and treatments and brings us closer to finding a cure for the rare medical condition ROHHAD. The ROHHAD association will achieve the 4 purposes detailed above by embarking on an extensive raising awareness campaign so that the needs of the children(and rarely adults) with ROHHAD and everyone who cares for them are recognised by wider society. The ROHHAD association will also embark on an extensive fundraising campaign.
OSCR Charity number
Registered
Postcode
G83 0RJ
Website
Latest income
£42,605 (on )
This organisation record is based on data from Office of Scottish Charity Regulator Charity Register Download published by Office of Scottish Charity Regulator.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC045645 is the identifier for this organisation within the scheme.
ROHHAD Association (this record)
This organisation has been classified using different categories:
Activities (OSCR)
- It carries out activities or services itself
Beneficiaries (OSCR)
- Children or young people
- People with disabilities or health problems
- Other defined groups
Purposes (OSCR)
- The advancement of education
- The advancement of health
- The saving of lives
- The relief of those in need by reason of age, ill health, disability, financial hardship or other disadvantage
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Scientific research and testing services
K10
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Associations
AS -
Beneficiary group
BE» ChildrenBE102 -
Beneficiary group
BE» FamiliesBE103 -
Charitable activities
CA» Policy campaigning and advocacyCA103 -
Charity and VCS support
CV» FundraisingCV102 -
Education
ED -
Health
HE -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» Medical researchRS101 -
Saving of lives
SL
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2015-05-28 |
Registered as a charity |
|
| 2017-05-31 | 31,388 | 3,625 |
| 2018-05-31 | 69,316 | 11,598 |
| 2019-05-31 | 198,695 | 11,260 |
| 2020-05-31 | 59,946 | 153,380 |
| 2021-05-31 | 24,849 | 180,160 |
| 2022-05-31 | 52,417 | 64,191 |
| 2023-05-31 | 42,605 | 16,483 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
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Last fetched from source: 2024-05-04
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Last fetched from source: 2024-05-02
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