This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC045465 is the identifier for this organisation within the scheme.
Description
4 The organisation is established for charitable purposes only, and in particular, the objects are: 4.1 To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. 4.2 To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. 4.3 To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. 4.4 To promote education and awareness both within the XP community and externally within the professional community and general population. 4.5 The promotion of inclusivity, diversity, equality, and awareness, operationally and across our activities
OSCR Charity number
Registered
Postcode
AB33 8LP
Website
Latest income
£66,164 (on )
This organisation record is based on data from Office of Scottish Charity Regulator Charity Register Download published by Office of Scottish Charity Regulator.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-SC gives the scheme for this identifier (Scottish Charity Register), while SC045465 is the identifier for this organisation within the scheme.
Action for XP (this record)
This organisation has been classified using different categories:
Activities (OSCR)
- It makes grants, donations, loans, gifts or pensions to individuals
- It carries out activities or services itself
Beneficiaries (OSCR)
- People with disabilities or health problems
Purposes (OSCR)
- The advancement of education
- The advancement of health
- The promotion of equality and diversity
- The relief of those in need by reason of age, ill health, disability, financial hardship or other disadvantage
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Specialized outpatient care centres
C12
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Beneficiary group
BE» FamiliesBE103 -
Education
ED -
Health
HE» Health conditionHE200 -
Research
RS -
Research
RS» ScienceRS103
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2015-03-06 |
Registered as a charity |
|
| 2018-03-31 | 14,879 | 11,775 |
| 2019-03-31 | 13,069 | 25,048 |
| 2020-03-31 | 14,106 | 15,558 |
| 2021-03-31 | 9,226 | 849 |
| 2022-03-31 | 5,428 | 6,149 |
| 2023-03-31 | 66,164 | 23,839 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
View this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
Foundation Scotland
Express Grants (CLOSED) |
£1,742
2 months |
Grant to Teddington Trust SCIO
Jul 2015 to Sep 2015 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- Foundation Scotland (1 grant) | Licence | GrantNav Publisher page
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Last fetched from source: 2024-06-29
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Office of Scottish Charity Regulator Charity Register Download
Last fetched from source: 2024-06-27
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