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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.

The best identifier for this organisation is GB-CHC-1165873 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1165873 is the identifier for this organisation within the scheme.

Description

Raising awareness of Familial Chylomicronaemia Syndrome (FCS) and related conditions; educating patients, medical personnel and the public in general about FCS; supporting people with FCS and those affected by it to live a full, healthy and integrated life; advocating for access to excellent care and new medicines for all patients with FCS.

Also known as

  • Action FCS
  • LPLD Alliance

CCEW Charity number

1165873

Registered

Postcode

SW4 6NS

Website

actionfcs.org

Domain

actionfcs.org

Latest income

£281 (on )

This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.

Action FCS

GB-CHC-1165873

Locations

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Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Areas of operation in the UK

Registered Office in the UK

Action FCS

GB-CHC-1165873

Linked records

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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.

The best identifier for this organisation is GB-CHC-1165873 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1165873 is the identifier for this organisation within the scheme.

Action FCS (this record)

Organisation record from Charity Commission for England and Wales
Last updated 2024-07-01

Action FCS

Organisation record from Companies House
Last updated 2024-06-29

Action FCS

GB-CHC-1165873

Themes and activities

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This organisation has been classified using different categories:

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Services for people with disabilities D13

UK Charity Activity Tags

These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.

Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.

  • Health HE » Health condition HE200

Theme (CCEW)

  • The Advancement Of Health Or Saving Of Lives 103

Beneficiaries (CCEW)

  • Other Defined Groups 206

Activities (CCEW)

  • Provides Advocacy/advice/information 307

Scale of operation

  • National

Action FCS

GB-CHC-1165873

Charity financial history

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Year ending Income (£) Spending (£)
2016-03-04 CIO registration
2016-12-31 17,200 5,254
2017-12-31 21,106 1,948
2018-12-31 5,313 4,638
2019-12-31 3,941 4,602
2020-12-31 2,963 2,150
2021-12-31 1,857 3,700
2022-12-31 281 398
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

Action FCS

GB-CHC-1165873

Charity people

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2022
£
2021
£
Employees paid more than £60,000 - -
Volunteers - -
Trustees 4
Employees
Volunteers

Data on employees is only available for financial years where the charity's income was more than £500,000.

Action FCS

GB-CHC-1165873

Income from government

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According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2022 (the latest year with data available) or 2021.

Action FCS

GB-CHC-1165873

Data sources

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Find that Charity Relationship Lookups

Last fetched from source: 2024-07-01

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Source for record links:

Companies House

Free Company Data Product

The Free Company Data Product is a downloadable data snapshot containing basic company data of live companies on the register. This snapshot is provided as ZIP files containing data in CSV format and is split into multiple files for ease of downloading.

Last fetched from source: 2024-06-29

Open Government Licence v3.0 | Access data | Download data

Source for records:

Charity Commission for England and Wales

Registered charities in England and Wales

Data download service provided by the Charity Commission

Last fetched from source: 2024-07-01

Open Government Licence v2.0 | Access data | Download data (zip)

Source for records: