This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1181988 is the identifier for this organisation within the scheme.
Description
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Also known as
- The 1P36 Family Trust
- The 1p36 Family Trust
CCEW Charity number
Registered
Postcode
DA3 8HX
Website
Latest income
£13,404 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
More about this organisation
Find that Charity is not responsible for the content of external websites
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Areas of operation in the UK
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 0 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1181988 is the identifier for this organisation within the scheme.
The 1P36 Family Trust (this record)
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Services for people with disabilities
D13
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Beneficiary group
BE» ChildrenBE102 -
Beneficiary group
BE» FamiliesBE103 -
Education
ED -
Health
HE» Health conditionHE200 -
Research
RS
Theme (CCEW)
-
The Advancement Of Health Or Saving Of Lives
103
Beneficiaries (CCEW)
-
People With Disabilities
203
Activities (CCEW)
-
Provides Services
306 -
Provides Advocacy/advice/information
307
Scale of operation
- National
| Year ending | Income (£) | Spending (£) |
|---|---|---|
| 2019-02-12 |
CIO registration |
|
| 2020-03-31 | 21,307 | 7,184 |
| 2021-03-31 | 3,736 | 576 |
| 2022-03-31 | 10,644 | 15,145 |
| 2023-03-31 | 13,404 | 4,602 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
| 2023 £ |
2022 £ |
|
|---|---|---|
| Employees paid more than £60,000 | - | - |
| Volunteers | 1 | 8 |
| Trustees | 3 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.
View this organisation's grants on GrantNav.
| Date | Funder | Amount awarded | Description | |
|---|---|---|---|---|
|
The National Lottery Community Fund
National Lottery Awards for All |
£10,000
1 year |
1p36 Family Conference 2021
Aug 2020 to Sep 2021 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- The National Lottery Community Fund (1 grant) | Licence | GrantNav Publisher page
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Last fetched from source: 2024-04-19
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Last fetched from source: 2024-04-13
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Last fetched from source: 2024-04-19
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