This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 1 inactive record, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1181244 is the identifier for this organisation within the scheme.
Description
BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.
Also known as
- Bardet-Biedl Syndrome UK
- Bardet-Biedl Syndrome UK (BBS UK)
- BBS UK
- Bardet-Biedl Syndrome UK
CCEW Charity number
Registered
Postcode
CO12 4UP
Website
Latest income
£242,781 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 1 inactive record, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1181244 is the identifier for this organisation within the scheme.
Bardet-Biedl Syndrome UK (inactive)
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Services for people with disabilities
D13
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Beneficiary group
BE
» FamiliesBE103
-
Charitable activities
CA
» Advice and individual advocacyCA101
-
Health
HE
» Health conditionHE200
Theme (CCEW)
-
General Charitable Purposes
101
-
The Advancement Of Health Or Saving Of Lives
103
-
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201
-
People With Disabilities
203
Activities (CCEW)
-
Provides Services
306
-
Provides Advocacy/advice/information
307
-
Sponsors Or Undertakes Research
308
Scale of operation
- National
Year ending | Income (£) | Spending (£) |
---|---|---|
2018-12-18 |
CIO registration |
|
2019-12-31 | 0 | |
2020-12-31 | 53,704 | 55,174 |
2022-03-31 | 154,564 | 93,539 |
2023-03-31 | 242,781 | 250,141 |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
2023 £ |
2022 £ |
|
---|---|---|
Employees paid more than £60,000 | - | - |
Volunteers | 12 | 10 |
Trustees | 9 |
Data on employees is only available for financial years where the charity's income was more than £500,000.
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.
View this organisation's grants on GrantNav.
Date | Funder | Amount awarded | Description | |
---|---|---|---|---|
The National Lottery Community Fund
National Lottery Awards for All England |
£9,500
0.9508196721311475 months |
BBS UK Weekend Family Conference
Sep 2023 |
||
The National Lottery Community Fund
National Lottery Awards for All |
£8,985
1 year |
Development/Administration Officer
Mar 2019 to Mar 2020 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- The National Lottery Community Fund (2 grants) | Licence | GrantNav Publisher page
Office of Scottish Charity Regulator
Office of Scottish Charity Regulator Charity Register Download
Last fetched from source: 2024-03-21
Open Government Licence v2.0
| Access data
|
Download data
Source for records:
Companies House
Free Company Data Product
The Free Company Data Product is a downloadable data snapshot containing basic company data of live companies on the register. This snapshot is provided as ZIP files containing data in CSV format and is split into multiple files for ease of downloading.
Last fetched from source: 2024-03-23
Open Government Licence v3.0
| Access data
|
Download data
Source for records:
Charity Commission for England and Wales
Registered charities in England and Wales
Data download service provided by the Charity Commission
Last fetched from source: 2024-03-27
Open Government Licence v2.0
| Access data
|
Download data (zip)
Source for records:
Find that Charity
Find that Charity Relationship Lookups
Last fetched from source: 2024-03-28
| Access data
|
Download data (csv)
Source for record links: