|

Find that Charity

This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 1 inactive record, from 2 data sources.

The best identifier for this organisation is GB-CHC-1181244 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1181244 is the identifier for this organisation within the scheme.

Description

BBS UK provides support, information and advocacy services. It organises an annual family conference, a family activity weekend and social weekend for adults living with the syndrome. The charity maintains a website and produces twice-yearly newsletters, an annual Conference Report, information leaflets and online resources.

Also known as

  • Bardet-Biedl Syndrome UK
  • Bardet-Biedl Syndrome UK (BBS UK)
  • BBS UK
  • Bardet-Biedl Syndrome UK

CCEW Charity number

1181244

Registered

Postcode

CO12 4UP

Website

bbsuk.org.uk

Latest income

£242,781 (on )

This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Locations

Back to contents

Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Areas of operation in the UK

Registered Office in the UK

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Linked records

Back to contents

This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 1 inactive record, from 2 data sources.

The best identifier for this organisation is GB-CHC-1181244 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1181244 is the identifier for this organisation within the scheme.

Bardet-Biedl Syndrome UK (BBS UK) (this record)

Organisation record from Charity Commission for England and Wales
Last updated 2024-03-27

Bardet-Biedl Syndrome UK (BBS UK)

Organisation record from Companies House
Last updated 2024-03-23

Bardet-Biedl Syndrome UK (inactive)

Organisation record from Office of Scottish Charity Regulator
Last updated 2024-03-21

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Themes and activities

Back to contents

This organisation has been classified using different categories:

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Services for people with disabilities D13

UK Charity Activity Tags

These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.

Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.

  • Beneficiary group BE » Families BE103
  • Charitable activities CA » Advice and individual advocacy CA101
  • Health HE » Health condition HE200

Theme (CCEW)

  • General Charitable Purposes 101
  • The Advancement Of Health Or Saving Of Lives 103
  • Disability 104

Beneficiaries (CCEW)

  • Children/young People 201
  • People With Disabilities 203

Activities (CCEW)

  • Provides Services 306
  • Provides Advocacy/advice/information 307
  • Sponsors Or Undertakes Research 308

Scale of operation

  • National

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Charity financial history

Back to contents
Year ending Income (£) Spending (£)
2018-12-18 CIO registration
2019-12-31 0
2020-12-31 53,704 55,174
2022-03-31 154,564 93,539
2023-03-31 242,781 250,141
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Charity people

Back to contents
2023
£
2022
£
Employees paid more than £60,000 - -
Volunteers 12 10
Trustees 9
Employees
Volunteers

Data on employees is only available for financial years where the charity's income was more than £500,000.

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Income from government

Back to contents

According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Grants received

Back to contents

View this organisation's grants on GrantNav.

Date Funder Amount awarded Description
The National Lottery Community Fund
National Lottery Awards for All England
£9,500
0.9508196721311475 months
BBS UK Weekend Family Conference
Sep 2023
The National Lottery Community Fund
National Lottery Awards for All
£8,985
1 year
Development/Administration Officer
Mar 2019 to Mar 2020

Data source

Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.

Bardet-Biedl Syndrome UK (BBS UK)

GB-CHC-1181244

Data sources

Back to contents

Office of Scottish Charity Regulator

Office of Scottish Charity Regulator Charity Register Download

Last fetched from source: 2024-03-21

Open Government Licence v2.0 | Access data | Download data

Source for records:

Companies House

Free Company Data Product

The Free Company Data Product is a downloadable data snapshot containing basic company data of live companies on the register. This snapshot is provided as ZIP files containing data in CSV format and is split into multiple files for ease of downloading.

Last fetched from source: 2024-03-23

Open Government Licence v3.0 | Access data | Download data

Source for records:

Charity Commission for England and Wales

Registered charities in England and Wales

Data download service provided by the Charity Commission

Last fetched from source: 2024-03-27

Open Government Licence v2.0 | Access data | Download data (zip)

Source for records:

Find that Charity

Find that Charity Relationship Lookups

Last fetched from source: 2024-03-28

| Access data | Download data (csv)

Source for record links: