|

Find that Charity

Organisation record

The Alkaptonuria Society Ltd

A Registered Charity based in England

This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.

The best identifier for this organisation is GB-CHC-1101052 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1101052 is the identifier for this organisation within the scheme.

Description

The Alkaptonuria Society is a patient group organisation which helps and supports people with Alkaptonuria a rare genetic disease. It helps people who suffer from Alkaptonuria and we receive worldwide enquiries. We are involved in research with the University of Liverpool to find a cure for Alkaptonuria.

Also known as

  • The Aku Society
  • AKU Society
  • The Alkaptonuria Society Ltd
  • The Alkaptonuria Society
  • The Alkaptonuria Society Limited
  • The Alkaptonuria Society Ltd

CCEW Charity number

1101052

Company number

04814120

Registered

Postcode

CB1 2BL

Website

akusociety.org

Domain

akusociety.org

Latest income

£381,037 (on )

This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.

The Alkaptonuria Society Ltd

GB-CHC-1101052

Locations

Back to contents

Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Areas of operation in the UK

Registered Office in the UK

The Alkaptonuria Society Ltd

GB-CHC-1101052

Linked records

Back to contents

This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.

The best identifier for this organisation is GB-CHC-1101052 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1101052 is the identifier for this organisation within the scheme.

The Alkaptonuria Society Ltd

GB-CHC-1101052

Themes and activities

Back to contents

This organisation has been classified using different categories:

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Scientific research and testing services K10

UK Charity Activity Tags

These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.

Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.

  • Education ED » Higher education ED103
  • Health HE » Health condition HE200
  • Research RS

Theme (CCEW)

  • Education/training 102
  • The Advancement Of Health Or Saving Of Lives 103
  • Disability 104

Beneficiaries (CCEW)

  • Children/young People 201
  • Elderly/old People 202
  • People With Disabilities 203
  • The General Public/mankind 207

Activities (CCEW)

  • Provides Services 306
  • Provides Advocacy/advice/information 307
  • Sponsors Or Undertakes Research 308

Scale of operation

  • National

The Alkaptonuria Society Ltd

GB-CHC-1101052

Charity financial history

Back to contents
Year ending Income (£) Spending (£)
2003-12-05 Registered as a charity
2004-06-30 7,490 6,831
2005-06-30 26,177 7,247
2006-06-30 20,537 13,752
2007-06-30 75,659 21,140
2008-06-30 135,483 54,102
2009-06-30 86,560 107,327
2010-06-30 234,522 193,802
2011-06-30 216,034 207,797
2012-06-30 262,734 208,948
2013-06-30 322,643 402,908
2014-06-30 424,636 350,574
2015-06-30 353,690 315,508
2016-06-30 289,636 229,248
2017-06-30 337,089 260,008
2018-06-30 227,021 213,597
2019-06-30 266,546 251,705
2020-06-30 312,800 246,952
2021-06-30 335,222 272,750
2022-06-30 586,708 300,351
2023-06-30 381,037 292,618
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

The Alkaptonuria Society Ltd

GB-CHC-1101052

Charity people

Back to contents
2023
£
2022
£
Employees paid more than £60,000 1 -
Volunteers 21 10
Trustees 7
Employees
Volunteers

Data on employees is only available for financial years where the charity's income was more than £500,000.

The Alkaptonuria Society Ltd

GB-CHC-1101052

Income from government

Back to contents

According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.

The Alkaptonuria Society Ltd

GB-CHC-1101052

Grants received

Back to contents

Received 12 grants. Showing most recent 10 grants.

View this organisation's grants on GrantNav.

Date Funder Amount awarded Description
The National Lottery Community Fund
National Lottery Awards for All England
£10,000
1 year
AKU Patient Workshop
Jan 2023 to Jan 2024
Department for Digital, Culture, Media & Sport
Coronavirus Community Support Fund
£45,000 Coronavirus Community Support Fund
Cambridgeshire Community Foundation
Cambs. Coronavirus Community Fund
£4,750
8 months
Grant to The Alkaptonuria Society
Apr 2020 to Dec 2020
The National Lottery Community Fund
National Lottery Awards for All
£10,000
Oct 2020
The AKU Society Patient Workshop
Oct 2020
London Catalyst
Project
£2,000 AKU Society - 1
The National Lottery Community Fund
Awards for All
£9,950
1 year
Overcoming a lack of information for AKU patients
Nov 2013 to Nov 2014
The National Lottery Community Fund
Reaching Communities
£299,572
5 years
The Online AKU Community Project
Sep 2012 to Sep 2017
The National Lottery Community Fund
Awards for All
£9,450
1 year
AKU Training Event
Feb 2011 to Feb 2012
The National Lottery Community Fund
Research Grants
£492,973
5 years
Find AKUre
May 2009 to May 2014
The National Lottery Community Fund
Reaching Communities
£164,142
3 years
Alkaptonuria Information Centre
Sep 2007 to Sep 2010

Data source

Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.

The Alkaptonuria Society Ltd

GB-CHC-1101052

Data sources

Back to contents

Find that Charity

Find that Charity Relationship Lookups

Last fetched from source: 2024-04-20

| Access data | Download data (csv)

Source for record links:

Companies House

Free Company Data Product

The Free Company Data Product is a downloadable data snapshot containing basic company data of live companies on the register. This snapshot is provided as ZIP files containing data in CSV format and is split into multiple files for ease of downloading.

Last fetched from source: 2024-04-20

Open Government Licence v3.0 | Access data | Download data

Source for records:

Charity Commission for England and Wales

Registered charities in England and Wales

Data download service provided by the Charity Commission

Last fetched from source: 2024-04-20

Open Government Licence v2.0 | Access data | Download data (zip)

Source for records:

Source for record links:

Research Organization Registry Community

Research Organization Registry

ROR (Research Organization Registry) is a community-led registry of open, sustainable, usable, and unique identifiers for every research organization in the world. ROR includes identifiers and metadata for more than 100,000 organizations. ROR identifiers are designed to link research organizations to research outputs in scholarly infrastructure. Search the ROR registry at https://ror.org/search.

Last fetched from source: 2024-04-20

Creative Commons Public Domain 1.0 International licence | Access data | Download data

Source for records:

Source for record links: