This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 2 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1027384 is the identifier for this organisation within the scheme.
Description
Annual family conference, including children's activities throughout the weekend. plus professional speakers, and a chance for families and those with bbs to gain information and support throughout the weekend and the year.fundraising throughtout the year.supporting families and those with bbs with an up to date web page, plus information leaflets, newletters, and helpline.
Also known as
- Bardet - Biedl Syndrome UK
- Bardet-Biedl Syndrome UK
- Laurence-Moon-Bardet-Biedl Society
- LMBBS
CCEW Charity number
Registered
Removed
Postcode
TN4 9YA
Website
Domain
bbsuk.org.uk
Latest income
£101,078 (on )
This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.
Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.
Registered Office in the UK
This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 2 active records and 2 inactive records, from 2 data sources.
What is an organisation identifier?
An organisation identifier is a unique piece of text that definitively identifies an organisation.
Examples include charity numbers and company numbers.
Identifiers are usually assigned by an external body like a regulator.
Findthatcharity uses the Org ID scheme to create identifiers.
GB-CHC gives the scheme for this identifier (Charity Commission), while 1027384 is the identifier for this organisation within the scheme.
Bardet - Biedl Syndrome UK (this record) (inactive)
Bardet-Biedl Syndrome UK (inactive)
This organisation has been classified using different categories:
International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)
ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.
-
Services for people with disabilities
D13
UK Charity Activity Tags
These tags are taken from a project to classify all UK charities using a common set of tags. The tags are applied using keyword searching, so may be incorrect for particular cases.
Visit charityclassification.org.uk for more information on the project. If you have any feedback on the classification system or how it has been applied there is a form on the project homepage.
-
Beneficiary group
BE
» FamiliesBE103
-
Education
ED
-
Health
HE
-
Health
HE
» Health conditionHE200
Theme (CCEW)
-
General Charitable Purposes
101
-
The Advancement Of Health Or Saving Of Lives
103
-
Disability
104
Beneficiaries (CCEW)
-
Children/young People
201
-
People With Disabilities
203
Activities (CCEW)
-
Provides Advocacy/advice/information
307
Scale of operation
- National
Year ending | Income (£) | Spending (£) |
---|---|---|
1993-10-19 |
Registered as a charity |
|
2004-12-31 | 9,145 | 14,026 |
2005-12-31 | 32,102 | 23,040 |
2006-12-31 | 27,465 | 28,472 |
2007-12-31 | 23,811 | 27,547 |
2008-12-31 | 47,310 | 37,295 |
2009-12-31 | 26,374 | 37,802 |
2010-12-31 | 54,223 | 39,000 |
2011-12-31 | 58,364 | 39,785 |
2012-12-31 | 48,801 | 57,005 |
2013-12-31 | 41,741 | 42,824 |
2014-12-31 | 35,319 | 38,420 |
2015-12-31 | 59,796 | 61,311 |
2016-12-31 | 63,940 | 30,813 |
2017-12-31 | 51,217 | 40,238 |
2018-12-31 | 97,945 | 63,298 |
2019-12-31 | 101,078 | 104,976 |
2020-12-23 |
Removed |
Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.
2019 £ |
2018 £ |
|
---|---|---|
Employees paid more than £60,000 | - | - |
Volunteers | 10 | 10 |
Trustees | - |
Data on employees is only available for financial years where the charity's income was more than £500,000.
According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2019 (the latest year with data available) or 2018.
View this organisation's grants on GrantNav.
Date | Funder | Amount awarded | Description | |
---|---|---|---|---|
The National Lottery Community Fund
National Lottery Awards for All England |
£9,500
0.9508196721311475 months |
BBS UK Weekend Family Conference
Sep 2023 |
||
The National Lottery Community Fund
National Lottery Awards for All |
£8,985
1 year |
Development/Administration Officer
Mar 2019 to Mar 2020 |
Data source
Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.
- The National Lottery Community Fund (2 grants) | Licence | GrantNav Publisher page
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Last fetched from source: 2024-04-19
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