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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.

The best identifier for this organisation is GB-CHC-1001307 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1001307 is the identifier for this organisation within the scheme.

Description

To SUPPORT and inform people with genetic haemochromatosis. To promote public AWARENESS of genetic haemochromatosis.To encourage and support RESEARCHinto haemochromatosis.To EDUCATE healthcare professionals and others with an interest in genetic haemochromatosis.

Also known as

  • The Haemochromatosis Society
  • Haemochromatosis UK
  • Huk
  • Haemochromatosis UK

CCEW Charity number

1001307

Company number

02541361

Registered

Postcode

PE11 3YP

Website

haemochromatosis.org.uk

Domain

huk.org.uk

Latest income

£423,698 (on )

This organisation record is based on data from Registered charities in England and Wales published by Charity Commission for England and Wales.

Haemochromatosis UK

GB-CHC-1001307

Locations

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Depending on the data source, location may describe the headquarters of the organisation rather than the area it operates in.

Registered Office in the UK

Haemochromatosis UK

GB-CHC-1001307

Linked records

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This organisation record is part of a group of linked records that describe a single organisation. The organisation is linked to 3 active records and 0 inactive records, from 3 data sources.

The best identifier for this organisation is GB-CHC-1001307 .
What is an organisation identifier?

An organisation identifier is a unique piece of text that definitively identifies an organisation.

Examples include charity numbers and company numbers.

Identifiers are usually assigned by an external body like a regulator.

Findthatcharity uses the Org ID scheme to create identifiers.

GB-CHC gives the scheme for this identifier (Charity Commission), while 1001307 is the identifier for this organisation within the scheme.

Haemochromatosis UK (this record)

Organisation record from Charity Commission for England and Wales
Last updated 2024-04-23

Haemochromatosis UK

Organisation record from Companies House
Last updated 2024-04-20

Haemochromatosis UK

GB-CHC-1001307

Themes and activities

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This organisation has been classified using different categories:

International Classification of Non-profit and Third Sector Organizations (ICNP/TSO)

ICNP/TSO categories have been automatically assigned from a machine learning model, as part of the UK Charity Classification project.

  • Grant-making foundations H10

Theme (CCEW)

  • The Advancement Of Health Or Saving Of Lives 103

Beneficiaries (CCEW)

  • Other Defined Groups 206

Activities (CCEW)

  • Makes Grants To Organisations 302
  • Provides Other Finance 303
  • Provides Services 306
  • Provides Advocacy/advice/information 307

Scale of operation

  • National

Haemochromatosis UK

GB-CHC-1001307

Charity financial history

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Year ending Income (£) Spending (£)
1990-12-17 Registered as a charity
2004-09-30 16,506 12,944
2005-09-30 13,446 25,254
2006-09-30 21,376 18,177
2007-09-30 36,204 10,700
2008-09-30 24,009 5,730
2009-09-30 23,358 7,090
2010-09-30 35,830 10,670
2011-09-30 22,009 21,440
2012-09-30 34,727 22,820
2013-09-30 31,243 26,303
2014-09-30 25,039 16,148
2015-12-30 61,081 76,850
2016-12-30 104,115 126,431
2017-12-31 139,207 143,602
2018-12-31 344,486 248,169
2019-12-31 364,695 324,531
2020-12-31 317,667 229,432
2021-12-31 366,138 326,020
2022-12-31 436,806 457,303
2023-12-31 423,698 394,085
Income and Spending
Funds and Reserves

Data on funds and reserves are only available for financial years where the charity's income was more than £500,000.

Haemochromatosis UK

GB-CHC-1001307

Charity people

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2023
£
2022
£
Employees paid more than £60,000 - -
Volunteers 40 40
Trustees 3
Employees
Volunteers

Data on employees is only available for financial years where the charity's income was more than £500,000.

Haemochromatosis UK

GB-CHC-1001307

Income from government

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According to data returned to the Charity Commission, this charity did not receive income from government grants or contracts in 2023 (the latest year with data available) or 2022.

Haemochromatosis UK

GB-CHC-1001307

Grants received

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Received 17 grants. Showing most recent 10 grants.

View this organisation's grants on GrantNav.

Date Funder Amount awarded Description
The Shears Foundation £60,000
1 year
Haemochromatosis UK
The National Lottery Community Fund £10,000 Haemochromatosis Awareness in Rural Community
The National Lottery Community Fund
National Lottery Awards for All England
£10,000
11 months
We need to talk about Ironing
Jan 2023 to Dec 2023
The National Lottery Community Fund
Awards for All Northern Ireland
£10,000
11 months
The Iron Crew - We are the One in Ten
Aug 2022 to Jul 2023
The National Lottery Community Fund
National Lottery Awards for All Wales
£10,000
11 months
Haearn Cymru - Wrecsam
Sep 2022 to Aug 2023
The National Lottery Community Fund
National Lottery Awards for All Scotland
£10,000
11 months
Community support for people affected by genetic haemochromatosis
May 2021 to Apr 2022
The National Lottery Community Fund
National Lottery Awards for All Wales
£9,740
11 months
Community support for Welsh people affected by genetic haemochromatosis
Jun 2021 to May 2022
The Shears Foundation £25,000
1 year
Haemochromatosis UK
Foundation Scotland
Response Recovery and Resilience (CLOSED)
£5,000
4 months
Grant to The Haemochromatosis Society
Nov 2020 to Mar 2021
Department for Digital, Culture, Media & Sport
Big Night In
£5,000 VSCE CMC Fund

Data source

Some grants data comes from funders who publish data using the 360Giving Data Standard. It was accessed using the 360Giving Datastore.

National Lottery grants data comes from the Department of Culture, Media and Sport who publish the National Lottery grants database.

This data is used under the Open Government Licence. Grants that are also published under 360Giving have been removed to ensure there is not duplication.

  • The National Lottery (2 grants) | Licence

Haemochromatosis UK

GB-CHC-1001307

Data sources

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